Connect with others who understand.

Learn from expert-reviewed resources
Real advice from people who’ve been there
People who understand what you’re going through

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Connect with others who get you with Groups

Bringing together people with similar shared interests, our groups focus on condition-related topics that are top of mind for everyone.

Newly Diagnosed

176 Members

Join a group focused on supporting and guiding people recently diagnosed with the condition

Food and Recipes

141 Members

Share and discover recipes and eating tips

Movement, Activity and Exercise

130 Members

Share how you like to move and find support and encouragement

Prayer

103 Members

Join a group for people of faith to share prayers and receive support

Growing Older (65+)

54 Members

Join a dedicated group for members 65+ to discuss the unique challenges of growing older with the condition

MyDesmoidTumorTeam is the social network for those living with desmoid tumors. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for desmoid tumor. MyDesmoidTumorTeam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgement-free place.

MyDesmoidTumorTeam is not a medical referral site and does not recommend or endorse any particular provider or medical treatment. No information on MyDesmoidTumorTeam should be construed as medical and/or health advice.

Connect with others who understand.

Connect with others who get you with Groups

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Information You Can Trust.Support When You Need It.

Information You Can Trust.
Support When You Need It.