Connect with others who understand.

Sign up Log in
About MyDesmoidTumorTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Hi I Would Like To Know About Clinical Research Is Available In My City Virginia Beach VA Or Norfolk VA.

By A MyDesmoidTumorTeam Member 1 answer

I Have Neurofibromatosis. Is This The Same As Desmoid Tumors?

By A MyDesmoidTumorTeam Member 1 answer

What Meds Can You Take For Uncoftorability

By A MyDesmoidTumorTeam Member 2 answers

Which Desmoid Tumor Symptom Surprised You The Most?

By A MyDesmoidTumorTeam Member 2 answers
24 questions

Do You Follow A Specific Diet To Help With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
A MyDesmoidTumorTeam Member

I had no choice as I have so many health problems it is mind boggling to realize that I am still alive and managing most. I have besides that cancer, diabetes, Chronic kidney disease, stage 4 but not… read more

September 26

Which Desmoid Tumor Symptom Surprised You The Most?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
A MyDesmoidTumorTeam Member

@A MyDesmoidTumorTeam Member - It’s really incredible how fast desmoid tumors can develop, right? That sudden growth can catch you off guard and feel overwhelming. It must have been quite a shock. How… read more

5 days ago

What Coping Strategies Work Best For Desmoid Tumors? 🌟💪

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA

Share your experiences with pain management, emotional support, or lifestyle adjustments. Your strategies could help someone else in their journey!

Comment below with your coping tips and let’s support each other! 💬

What Are Your Top Tips For Dealing With Desmoid Tumor In The Heat?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
A MyDesmoidTumorTeam Member

That sounds like solid advice! Staying hydrated and monitoring your time in the heat are definitely important, especially if you're dealing with tumors. It's great that you're being proactive about… read more

July 23

Are You Frustrated With Finding Effective Treatments For Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA

I Just Read The Answer To My Last Question, Desmond Tumors Grow In And On Soft Tissue In The Body While Fibroid Tumors Grow On Nerve Ending

A MyDesmoidTumorTeam Member asked a question 💭
Parkersburg, WV

But they can also grow in just about any part of the body and attack the entire body because they Basically suffocate the organ or area that there growing on and also cause Severe nerve damage on which they attach to and grow causing what ever organ or body part the nerves in to eventually not function properly or sadly not at all. Causing Extreme Pain and Extreme Danger. Fibroid tumors are very dangerous to and One who needs to have surgery on anything or to have one removed. Because of the… read more

A MyDesmoidTumorTeam Member

Hey @A MyDesmoidTumorTeam Member! This is so fascinating to learn 😲 Thank you for sharing such detailed information about fibroid tumors and their risks. It sounds like you've faced some significant… read more

June 10

What's A Common Misconception About Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
A MyDesmoidTumorTeam Member

Hey @A MyDesmoidTumorTeam Member - I'm sorry to hear that you're left with more questions than answers. Have you taken a look at this article?https://www.mydesmoidtumorteam.com/resources/wh... I feel… read more

May 30

May Is Mental Health Awareness Month. Any Advice For Someone Newly Diagnosed With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA

What Are Some Things That You Wish Your Friends And Family Knew About Living With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA

How Do You Manage The Pain And Discomfort Associated With Desmoid Tumor?

A MyDesmoidTumorTeam Member asked a question 💭
San Francisco, CA
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of Use, and our Health Data and Privacy policies.
Already a Member? Log in