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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyDesmoidTumorTeam Member asked a question 💭
LosAngeles 90062
December 25, 2025
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Desmoid Tumor in the Neck and Head: Symptoms and Care Read Article...
MyDesmoidTumorTeam

It sounds like you're concerned about a growing desmoid tumor and considering removal. It's understandable to want it addressed, especially as it increases in size.

Surgery is no longer the first-line treatment for desmoid tumors because they have a high chance of returning after removal — studies show recurrence rates Show Full Answer

It sounds like you're concerned about a growing desmoid tumor and considering removal. It's understandable to want it addressed, especially as it increases in size.

Surgery is no longer the first-line treatment for desmoid tumors because they have a high chance of returning after removal — studies show recurrence rates between 20 percent and 80 percent. When tumors grow back, they may be more aggressive than before, and sometimes multiple small tumors can develop near the surgery site.

Current treatment approaches typically start with active surveillance (watchful waiting) or medication rather than surgery. However, surgery may still be recommended in certain situations, such as when:

* The tumor is small and easily removable
* It's pressing on vital organs, blood vessels, or nerves
* It's causing significant symptoms
* It's located in the abdominal wall

Before making any decisions, it's important to consult with a soft tissue cancer (sarcoma) specialist who has experience with desmoid tumors. They can evaluate your specific situation and discuss all available treatment options, including the risks and benefits of surgery versus other approaches.

If you're not currently seeing a desmoid tumor specialist, seeking a second opinion could be valuable for exploring all your options.

December 25, 2025

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