Besides my pain meds I often find great benefits with using an ice bag. Sometimes a heating pad helps too. It took me a while to learn when to use which.
June 1
Dealing with intense daily pain after desmoid tumor surgery is really tough, and it's something many others in this situation face too. Studies show that up to 63% of people living with desmoid tumors experience chronic pain — so you're definitely not alone in this.
There are several approaches that can help manage Show Full Answer
Dealing with intense daily pain after desmoid tumor surgery is really tough, and it's something many others in this situation face too. Studies show that up to 63% of people living with desmoid tumors experience chronic pain — so you're definitely not alone in this.
There are several approaches that can help manage post-surgical pain, and often a combination works best:
- NSAIDs (Nonsteroidal Anti-Inflammatory Drugs) — These are commonly used for desmoid tumor pain. Over-the-counter options include ibuprofen (Advil/Motrin), naproxen (Aleve), or aspirin. Prescription-strength options like celecoxib (Celebrex) or sulindac are also available. Always take them with food to protect your stomach.
- Physical Therapy — A physical therapist can create a personalized plan to improve mobility, strength, and pain relief around the surgical site.
- Acupuncture — While not specifically studied for desmoid tumor pain, acupuncture has shown effectiveness for chronic pain in general.
- Mindfulness and Meditation — These techniques can help manage both pain and the emotional toll it takes. Since the pain is intense and daily, it's really important to speak with your healthcare team soon. They may refer you to a pain specialist who can tailor a plan specifically for your needs. It's also worth mentioning any new or worsening pain to your doctor, as they may want to run tests to check on the surgical site.
Don't settle for just getting by — good pain management can make a real difference in your quality of life.
AI-generated responses are not a substitute for medical advice. These services are not intended to
diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.
4 Ways To Relieve Pain With Desmoid Tumors
May 25
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