Be careful with contrast. Too much too often can cause kidney damage. It did with me. It made mine worse.
June 17
That's a really important question. Desmoid tumors don't spread through the body the way cancerous tumors do — they don't metastasize. So having one in a specific location doesn't directly "send" tumor cells to other parts of your body.
However, the underlying factors that contributed to the first tumor — such as a genetic Show Full Answer
That's a really important question. Desmoid tumors don't spread through the body the way cancerous tumors do — they don't metastasize. So having one in a specific location doesn't directly "send" tumor cells to other parts of your body.
However, the underlying factors that contributed to the first tumor — such as a genetic mutation (like in the CTNNB1 gene) or a condition like Familial Adenomatous Polyposis (FAP) — can mean your body may be more prone to developing desmoid tumors in general. Some key things to keep in mind:
- Genetics play a role — if you carry certain gene mutations, your risk of developing desmoid tumors elsewhere may be higher
- Trauma or surgery can trigger new tumor growth at different sites, independent of an existing tumor
- Regular monitoring through imaging (MRI, CT scans, or ultrasound) is important to catch any new growths early
It's worth having an open conversation with your care team about your specific risk factors, so they can tailor a monitoring plan that's right for you.
June 10
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