Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm still waiting to get into the MdAnderson hospital to begin my treatment. Had insurance issues, but hope that everything will be resolved by the 1st of August.

July 23
 · 
Reactions
What Are the Treatment Guidelines for Desmoid Tumor? Global Consensus Paper Read Article...
MyDesmoidTumorTeam

Desmoid tumors can develop in connective tissue almost anywhere in the body, so while the breast area isn't the most commonly cited location, it's not unheard of either. The most frequently reported locations include:

- The abdomen and abdominal wall
- Arms and legs
- Chest wall
- Shoulders and upper arms
- Head and neck

Show Full Answer

Desmoid tumors can develop in connective tissue almost anywhere in the body, so while the breast area isn't the most commonly cited location, it's not unheard of either. The most frequently reported locations include:

- The abdomen and abdominal wall
- Arms and legs
- Chest wall
- Shoulders and upper arms
- Head and neck

Since desmoid tumors grow in connective tissue, and connective tissue exists throughout the body, a tumor near or on the breast area is entirely possible. It's great that MD Anderson is on your radar β€” they are exactly the kind of specialized center that has experience with rare tumors like desmoid. Navigating insurance hurdles while waiting for treatment is genuinely stressful, and it's completely understandable to feel anxious during this waiting period.

Hang in there β€” getting to the right specialist is so worth the wait, and it sounds like you're doing all the right things to make that happen! πŸ’ͺ

July 23
A MyDesmoidTumorTeam Member

Rosie! I too was diagnosed with a Desmoid breast tumor. I had mine excised to clear margins. Last mamo was clear after 15months postop.

October 14
A MyDesmoidTumorTeam Member

I havent been back to see a doctor i will be

July 26

Related Questions

View All
A MyDesmoidTumorTeam Member asked a question πŸ’­
Elgin, SC

A MyDesmoidTumorTeam Member asked a question πŸ’­
Wymondham, UK