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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 23, 2025
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A MyDesmoidTumorTeam Member

From what I have read medically active surveillance is the first and most often practiced way to treat these unpredictable genetic material. Depending on how they act will then maybe need medical attention in some other way. Surgery is usually last resort.

September 2, 2025
MyDesmoidTumorTeam

Yes, desmoid tumors commonly return after surgery. Research shows the recurrence rate is between 24-77% of cases. These recurring tumors often appear at or near the original surgery site. Unfortunately, recurring tumors tend to be more aggressive than the original tumor. There's also a possibility of developing multifocal Show Full Answer

Yes, desmoid tumors commonly return after surgery. Research shows the recurrence rate is between 24-77% of cases. These recurring tumors often appear at or near the original surgery site. Unfortunately, recurring tumors tend to be more aggressive than the original tumor. There's also a possibility of developing multifocal tumors - multiple small tumors within the same general area. This is one reason why surgery is no longer the preferred first-line treatment for desmoid tumors unless symptoms are severe or the tumor location is particularly dangerous.

August 23, 2025
A MyDesmoidTumorTeam Member

Tagging a few folks to see if they can help: @MyDesmoidTumorTeam users...

August 26, 2025 (edited)

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