Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyDesmoidTumorTeam Member asked a question 💭
Vicksburg, MS
October 19, 2025
 · 
Be the first to react
MyDesmoidTumorTeam

While light flashes in the eyes are not listed among the common side effects of desmoid tumor treatments in the provided sources, it's important to report any new symptoms to your healthcare team right away. They can determine if what you're experiencing is related to your medication or needs further evaluation.

The most Show Full Answer

While light flashes in the eyes are not listed among the common side effects of desmoid tumor treatments in the provided sources, it's important to report any new symptoms to your healthcare team right away. They can determine if what you're experiencing is related to your medication or needs further evaluation.

The most common side effects of desmoid tumor treatments like chemotherapy and targeted therapies include:

• Fatigue
• Nausea and vomiting
• Hair loss
• Mouth sores
• Skin rashes
• Tingling or numbness in hands and feet Always track and report any new or unusual symptoms to your doctor. It's not always clear if symptoms are medication side effects or related to other aspects of your condition. Your healthcare team can properly evaluate your symptoms and adjust your treatment plan if needed.

October 19, 2025
A MyDesmoidTumorTeam Member

Lots of things can cause one to have flashes. Most are benign. Nutritional deficiency, headaches, extreme sunlight for long periods of time if looking at water. Cataracts. The list is long. Just check with you eye doctor. Good luck. I didn't mention some major problems as that is for a doctor to diagnose and probably don't apply to majority of people.

November 26, 2025
A MyDesmoidTumorTeam Member

I did have that on Ogsiveo but it all went away when I stopped the medication.

November 11, 2025
A MyDesmoidTumorTeam Member

I have had lightening flashes in the side and bottom of my eyes since I started the medication. I have been to MSK opto specialist and they say nothing is wrong - they also say they don’t know it to be a side effect but based upon the onset of the condition they think it can be.

November 11, 2025

Related Questions

View All
A MyDesmoidTumorTeam Member asked a question 💭
TEXAS, TX