Staying active during desmoid tumor treatment, including targeted therapies like nirogacestat, is generally encouraged — but it's important to work closely with your care team to find what's right for your body and your specific situation.
Nirogacestat, like many treatments, can cause side effects such as fatigue, which may Show Full Answer
Staying active during desmoid tumor treatment, including targeted therapies like nirogacestat, is generally encouraged — but it's important to work closely with your care team to find what's right for your body and your specific situation.
Nirogacestat, like many treatments, can cause side effects such as fatigue, which may affect your energy levels and ability to exercise. Listening to your body and adjusting accordingly is key. Here are some practical tips for staying active during treatment:
- Track your symptoms — Keep a journal of how you feel before, during, and after activity. This helps your doctor understand how treatment and exercise interact for you personally.
- Spend energy wisely — Think of your energy like a budget. On low-energy days, choose lighter activities and save bigger efforts for when you feel stronger.
- Adjust intensity, don't stop — Reducing pace, shortening workout time, or breaking activity into smaller chunks (like 10-minute walks) can keep you moving without overdoing it.
- Try low-impact alternatives — Swimming, walking, biking, tai chi, or yoga are gentler on the body and great options during treatment.
- Time pain medication smartly — If prescribed pain medication, taking it before planned activity can help maximize its effect during exercise.
- Ramp up slowly post-treatment — Don't rush back to your previous routine. Gradual progress is safer and more sustainable.
A MyDesmoidTumorTeam member shared: *"I love walking, and I had to cut my pace and time a bit"* — a great reminder that some movement is always better than none. Always consult your healthcare team before starting or adjusting any exercise routine during treatment. A referral to a physical therapist can also be incredibly helpful for building a plan tailored to your tumor's location and your treatment side effects.
July 12
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