Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 31
 · 
Reactions
A MyDesmoidTumorTeam Member

I went to Stanford to inquire. Due to location, I was not a candidate. It is being explored for DT with results in our favor. Good luck!

August 1
A MyDesmoidTumorTeam Member

Good to know that there are more options being researched! Thank you!

July 31
MyDesmoidTumorTeam

It sounds like you might be thinking of Histotripsy — and you're right that it's an emerging technique! However, Histotripsy actually works differently from heat-based treatments. It uses focused ultrasound waves to mechanically destroy tissue, rather than burning it.

The heat-based ultrasound treatment used for desmoid Show Full Answer

It sounds like you might be thinking of Histotripsy — and you're right that it's an emerging technique! However, Histotripsy actually works differently from heat-based treatments. It uses focused ultrasound waves to mechanically destroy tissue, rather than burning it.

The heat-based ultrasound treatment used for desmoid tumors is called High-Intensity Focused Ultrasound (HIFU). It uses intense, high-frequency sound waves to heat and destroy desmoid tumor tissue. Here's what's known about HIFU for desmoid tumors:

- It can precisely target tumor tissue while helping protect surrounding organs
- A few studies conducted in China showed it may be a viable option for desmoid tumor patients
- It is not currently being studied in clinical trials in the United States

As for Histotripsy specifically, there isn't enough research yet on its use with desmoid tumor tissue to say how effective it might be.

It's always worth bringing up emerging treatments like these with your care team — they can help weigh whether it's a realistic option for your specific situation. Staying curious about new approaches is never a bad thing! 💪

July 31

Related Questions

View All
A MyDesmoidTumorTeam Member asked a question 💭
Prijedor, BIH

A MyDesmoidTumorTeam Member asked a question 💭
Wymondham, UK