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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyDesmoidTumorTeam Member asked a question 💭
August 10
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MyDesmoidTumorTeam

This is a really important question to bring up with your doctor, as estrogen can play a role in desmoid tumor growth. Desmoid tumor cells can use estrogen to grow and divide, which is why estrogen-containing medications like hormone replacement therapy (HRT) or estrogen patches need careful consideration. Here's what's Show Full Answer

This is a really important question to bring up with your doctor, as estrogen can play a role in desmoid tumor growth. Desmoid tumor cells can use estrogen to grow and divide, which is why estrogen-containing medications like hormone replacement therapy (HRT) or estrogen patches need careful consideration. Here's what's generally understood about estrogen and desmoid tumors:

- Desmoid tumors are more common in people with higher estrogen levels
- Estrogen can fuel tumor cell growth and division
- Medications containing estrogen, including HRT and estrogen patches, may need to be reconsidered if you have an active desmoid tumor
- Interestingly, lower estrogen levels (like those seen in menopause) have been linked to tumor shrinkage

This doesn't mean you must stop immediately on your own — that decision should be made with your doctor. Stopping HRT abruptly can have its own effects on your body, so any changes should be carefully managed with medical guidance.

Be open with your healthcare team about all medications you're taking, including HRT, so they can help weigh the risks and explore alternatives if needed.

August 10

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A MyDesmoidTumorTeam Member asked a question 💭
Santa Maria, CA