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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My name is Katarina

A MyDesmoidTumorTeam Member asked a question 💭
Serbia

Hello, my name is Katarina. I have a four-year-old son who was diagnosed with desmoid-type fibromatosis in October 2025. He had a desmoid tumor in his gluteal area, and it was causing him a lot of pain.

He underwent surgery in Turkey in February 2026, and the tumor was completely removed. However, an MRI performed on September 2, 2026 showed that the tumor has returned in the same place. It is currently only a tiny spot, but unfortunately, it has returned.

At the moment, the doctors are not… read more

September 4
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MyDesmoidTumorTeam

Cryoablation is an emerging treatment for desmoid tumors that uses extreme cold to destroy tumor tissue through a minimally invasive procedure. While most available research focuses on adults, the general principles of cryoablation can apply to younger patients as well.

Cryoablation tends to work best for tumors that are:

- Show Full Answer

Cryoablation is an emerging treatment for desmoid tumors that uses extreme cold to destroy tumor tissue through a minimally invasive procedure. While most available research focuses on adults, the general principles of cryoablation can apply to younger patients as well.

Cryoablation tends to work best for tumors that are:

- Small to medium in size
- Located outside the abdomen
- Easily accessible (not near vital organs or nerves)
- Causing pain or functional problems
- Recurring after previous treatments For children specifically, the minimally invasive nature of cryoablation could be an advantage, as it generally means quicker recovery and fewer complications compared to traditional surgery. It can also be repeated if the tumor returns.

However, possible risks to be aware of include:

- Nerve injury
- Infection
- Bleeding
- Damage to nearby structures
- Incomplete tumor destruction

Because desmoid tumors in children can behave differently and treatment decisions are highly individual, consulting with a desmoid tumor specialist is especially important to determine if cryoablation is the right path forward for a child's specific situation.

September 4

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