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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was diagnosed with a desmoid tumor in my left hamstring a year and like 2 months ago, since i started my treatment with Nexavar, my hair has been thinning a lot and recently it's been dead and nothing helps it. I've tried dermatology shampoos, suplements, clean shampoos, everything, but my hair has never looked this ugly before. I don't know if i should shave it or cut it really short, because the volume and hair is practically non-existent. I don't know what to do, can someone please help me… read more

October 17
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A MyDesmoidTumorTeam Member

amazing, thank you so much! i’ll ask

October 20
A MyDesmoidTumorTeam Member

I know you said you used supplements. Have you tried B-complex make sure it contains all of them. There are many that leave out a couple. Add C-complex along with calcium, magnesium and zinc. Many nutrients work synergistically with each other for better results. If you just take vitamin C (ascorbic acid) you are wasting your money. Talk to a nutritionist with at least a master's degree, preferably a doctorate's degree. Certain supplements should NOT be taken with certain chemo drugs. I'm not a doctor but have done many years of research on it. See what you can find out about cod liver oil or maybe it's castor oil along with another item. You rub it on your scalp. Old wives tale but some of them work. Good luck.

October 20
A MyDesmoidTumorTeam Member

thank you so much! blessings 🙏

October 17
A MyDesmoidTumorTeam Member

I’ve lost my hsir . I was devastated but I covered up all my mirrors and had my grandchildren draw pictures of me with hair so when I saw them I smiled . It made my days more easier to deal with .Toques were a blessing . Wore them all summer . My hair has come back soft and curly . Just got the fuzz cut off and we will see . Find a positive solution to unbearable things that make you feel good … it’s hard but life is what you make it … hugs

October 17

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