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Real members of MyDesmoidTumorTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 30
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MyDesmoidTumorTeam

Caelyx (liposomal doxorubicin) is one of the chemotherapy options used for desmoid tumors. While personal experiences from others on this specific drug aren't available here, the known side effects of this type of chemotherapy are well documented.

Common side effects can include:

- Extreme fatigue that doesn't improve with Show Full Answer

Caelyx (liposomal doxorubicin) is one of the chemotherapy options used for desmoid tumors. While personal experiences from others on this specific drug aren't available here, the known side effects of this type of chemotherapy are well documented.

Common side effects can include:

- Extreme fatigue that doesn't improve with rest
- Nausea and vomiting
- Hair thinning or loss
- Mouth sores
- Dry, flaky, or sensitive skin
- Nail changes
- Low white blood cell counts
- Tingling or numbness in hands and feet The number of doses and whether further treatment is needed afterward really depends on how the tumor responds. Doctors monitor progress and may adjust or change the treatment plan if the tumor continues to grow.

Keeping a log of side effects to share at appointments is really helpful — it gives the care team a clearer picture of how things are going and what might need adjusting.

Posting this question to the MyDesmoidTumorTeam community feed would be a great way to hear directly from members who've been on Caelyx and can share their personal experiences!

April 30

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